Central Role of the Nurse in the Transition from Pediatric to Adult Endocrine Care

Program: Abstracts - Orals, Featured Poster Presentations, and Posters
Session: MON 290-291-Endocrine Nursing
Monday, June 17, 2013: 1:45 PM-3:45 PM
Expo Halls ABC (Moscone Center)

Poster Board MON-291
Andrew A Dwyer*1, Michael Hauschild1, Franziska Phan-Hug1, Francesca Amati1, Teresa Gyuriga2, Séverine Emmanouildis-Bertholet2, Anne Parisod-Messerli2 and Nelly Pitteloud1
1Centre Hospitalier Universitaire Vaudois (CHUV), Lausanne, Switzerland, 2Hopital de l’enfance de Lausanne (HEL), Lausanne, Switzerland
Advances in the treatment of a number of pediatric conditions has translated into increasing numbers of patients needing continuous endocrine care into young adulthood.  This has presented healthcare providers with new challenges in managing the transition of patients from pediatric to adult endocrine services (1).   Adolescence is a period of great physical, emotional, psychological, and social changes and disjointed transition of care can have significant impact on health related outcomes and gaps and cracks in care.  However, structured transition programs can reduce the negative psychological and medical sequelae providing continuity of care (2). 

The role of nursing in providing continuity of care and promoting self-care and empowerment in chronic conditions has been previously demonstrated (3).  The Pediatric Endocrine Unit and the Endocrinology, Diabetes, and Metabolism service of the Centre Hospitalier Universitaire Vaudois (CHUV) have developed a patient-centered transition program in which nursing plays a central role in the bridge between pediatric and adult care.  This innovative program involves endocrine and diabetes nurses working closely with pediatric and adult providers to deliver interventions including age-adapted patient education programs using electronic devices (i.e. computers,tablets, etc), structured electronic medical records linking pediatric and adult records, joint clinics run by pediatric and adult endocrinologists, and nurse-led case management.   This systematic approach involves patients and their families in the transition process to promote patient autonomy and empower adolescents to take increasing responsibility for their care while avoiding shortfalls and barriers to effective transition.

1. Godbut A, Tejedor I, Malivoir S, Polak M, Touraine P.  Transition from pediatric to adult healthcare: Assessment of specific needs of patients with chronic endocrine conditions.  Horm Res Paediatr. 2012; 78(4):247-55   2. Rapley P & Davidson PM. Enough of the problem: A review of time for health care transition solutions for young adults with a chronic illness. J Clin Nurs. 2010; 19:313-323   3. Bodenhiemer T. Nurses as Leaders in Chronic Care. BMJ. 2005; 330(7492): 612–613

Nothing to Disclose: AAD, MH, FP, FA, TG, SE, AP, NP

*Please take note of The Endocrine Society's News Embargo Policy at http://www.endo-society.org/endo2013/media.cfm

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