OR26-5 Few Adults with Type 1 Diabetes (T1D) Download and Retrospectively Review Their Diabetes Device Data

Program: Abstracts - Orals, Poster Preview Presentations, and Posters
Session: OR26-Type 1 and Cystic Fibrosis Related Diabetes: Technology and Peptides
Sunday, June 22, 2014: 11:30 AM-1:00 PM
W184 (McCormick Place West Building)

Helmsley Charitable Trust Abstract Awards in Type 1 Diabetes
Jenise Colleen Wong, MD PhD, Matthew Spindler, BA and Aaron Barak Neinstein, MD
University of California San Francisco, San Francisco, CA
People with type 1 diabetes (T1D) use a number of devices that collect and store large amounts of data, including blood glucose levels, carbohydrate intake, and insulin doses, in order to help manage their diabetes.  Patients typically use information from their devices when making real-time management decisions, and they or their health care providers can also retrospectively review and use this data to help adjust insulin regimens.  It is unknown how frequently people with T1D retrospectively review data on their own between clinic visits.  We conducted a cross-sectional survey of 98 adults with T1D (mean age 31.0 ± 14.7 years, 48% male, 66% non-Hispanic white, 68% on insulin pumps, 31% using continuous glucose monitoring, or CGM) to assess the frequency of using blood glucose monitor (BGM), insulin pump, and CGM data at home.  We defined “Downloaders” as those who downloaded data ≥4 times in one year, and “Reviewers” as those Downloaders who looked at their data ≥50% of the times that they downloaded (as opposed to simply downloading and giving the data to a provider without self-review).  Logistic regression was used to identify associated factors.  Only 21%, 26%, and 43% of BGM, insulin pump, and CGM users, respectively, ever downloaded data from their devices at home.  Even fewer met Downloader status (12% of BGM users, 15% of insulin pump users, and 37% of CGM users), and only 4% of BGM users, 3% of insulin pump users and 23% of CGM users were Downloaders who also met Reviewer status.  After adjusting for sex, ethnicity, insurance status, and highest level of education, older age was associated with increased odds of being a BGM Downloader (OR=1.08; 95%CI 1.02, 1.14; p=0.005); for every 10-year increase in age, there was a 2.1 times increased odds (95%CI 1.3, 3.6) of being a BGM Downloader.  No demographic factors were associated with insulin pump or CGM Downloader status or any Reviewer status.  In conclusion, nearly 60-80% of adults with T1D never download data from their devices and <25% retrospectively review their data at home on a regular basis.  As a group, subjects using CGM downloaded and reviewed their CGM data more frequently than did subjects using BGM or pumps.  Because self-review of device data can be helpful to patients in managing TID, more effort should be made to increase awareness and education about these device features and to improve usability for patients.

Nothing to Disclose: JCW, MS, ABN

*Please take note of The Endocrine Society's News Embargo Policy at https://www.endocrine.org/news-room/endo-annual-meeting

Sources of Research Support: JCW is supported by NIH Physician Scientist Award K12DK094726-01.