Session: SAT 270-310-Thyroid Neoplasia (posters)
Poster Board SAT 310
We screened 1974 unique electronic citations and reviewed 50 full-text papers. We included 5 cross-sectional, single-arm, patient-directed survey studies, including data from a total of 4984 respondents. All 5 studies reported on unmet information needs. The respective study sizes ranged from 62 to 2398 thyroid cancer survivors. Questionnaires were administered as follows, with some studies utilizing more than one method: online – 3 studies, paper-based questionnaire – 3 studies, and in-person interview – 2 studies. We categorized unmet information needs according to three main categories: A) thyroid cancer disease-related information, B) treatment-related information, and C) long-term effects of thyroid cancer or its treatment, disease surveillance, or aftercare. In four studies, the percentage of individuals with one or more specific unmet information need within each respective category ranged as follows: thyroid cancer disease information – 5% to 63%, treatment-related information – 2 to 76%, and long-term effects or aftercare – 45% to 75%. The information needs were variable for specific topics within categories. In the fifth study, the degree to which information needs were met were quantified by a score ranging from 1 (the worst) to 5 (the best), and the ranges of means (with standard deviations) was as follows: thyroid cancer information - 2.70 (1.20) to 4.02 (1.18), treatment information - 2.75 (1.19) to 3.97 (0.93), and long-term effects or aftercare – 2.37 (1.10) to 3.60 (1.24). The heterogeneity of the questionnaires utilized in the various studies precluded pooling the data in a meta-analysis. In conclusion, many thyroid cancer survivors report unmet information needs relating to various elements of knowledge about their disease, its treatment, or long-term effects and after-care. More work is needed to improve patient-directed knowledge translation in the field of thyroid cancer.
Nothing to Disclose: AA, YGH, RF, AN, DPG, AMS
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